Embracing ReMARKable: A Mother’s Story of Hope

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October 23, 2024

Female entrepreneurs often face unexpected challenges that test their resilience and determination. Deb Bachman’s story is a powerful testament to the strength and purpose that can show up, even in the darkest circumstances. As her son powerfully says, “My challenges will not stop me.”

The Early Diagnosis: A Test of Strength

For Deb, the life-altering news about her son Markus arrived before he was even born. She developed a condition called polyhydramnios—too much amniotic fluid—an early sign that something was seriously wrong. Soon after, doctors diagnosed Markus with a rare and severe medical condition called laryngeal cleft type 4, giving him only a 3% chance of survival. The diagnosis was devastating, leaving Deb and her family with unimaginable uncertainty.

Navigating the Journey: From Heartbreak to Hope

In our conversation, Deb opens up about her journey of co-authoring the book Embracing ReMARKable alongside Markus. She shares intimate stories of how she and her family navigated moments of uncertainty, heartbreak, and triumph, giving us a glimpse into the day-to-day realities of raising a child with complex medical needs.

From their initial shock at the diagnosis to the way they found their “new normal,” Deb reflects on how these experiences shaped their lives in unexpected, powerful ways. Her story isn’t just one of survival—it’s about finding joy and hope in the most unlikely places.

In the years that followed, Deb navigated countless hospital stays, surgeries, and medical crises with her family. She enrolled in nursing school so she could better understand and manage Markus’ complex needs. Meanwhile, her husband began chronicling their journey through detailed emails and updates, creating an invaluable record of their experiences.

As Markus grew older, he continued to defy the odds, graduating from high school and college. Throughout it all, Deb and her family leaned on their deep faith, as well as the support of organizations, family, and friends.

Co-Authoring Embracing ReMARKable: A Story of Resilience

It was during a health crisis in Markus’ late teens that the idea for the book “Embracing ReMARKable” became a reality. Deb encouraged him to start writing down his memories and stories, worried that he might not survive. What emerged was a powerful testament to the family’s resilience and Markus’ own determination to live a full life.

The book is a testament to that sentiment, showing how one family’s journey of hope and purpose can make a profound impact. Even in our darkest moments, there is often an opportunity to find light, meaning, and a greater sense of purpose. Deb and Markus’ journey is a powerful reminder that with faith, resilience, and a willingness to embrace the unexpected, we can overcome even the most daunting of challenges as female entrepreneurs.

“My Challenges Will Not Stop Me!”

At the end of our conversation, we had the honor of being joined by Markus Bachman himself. His presence brought a powerful and personal perspective to the discussion, deepening the connection to their shared story. Hearing Markus reflect on his journey and the lessons he’s learned added an inspiring dimension, reminding us all of the resilience, hope, and purpose that can emerge, even in the face of life’s most challenging obstacles. Markus’ words serve as a profound testament to the strength that can show up, even in our darkest moments – a testament that Deb Bachman’s remarkable story so beautifully embodies.

More about Deb Bachman

Deb is a mom of three children, including Markus, who was born with a rare condition in 1999. She, along with her son, Markus, authored their story,  Embracing reMARKable, in 2020. Deb has been a registered nurse for almost 20 years with an emphasis in pediatric homecare and clinical settings. She is an advocate for the rare disease community and funding issues related to homecare. She is the co-founder of the nonprofit Laryngeal Cleft Network.

• Grab your copy of Embracing reMARKable and dive into a journey of inspiration and transformation! Get yours now at Amazon.
• Join the Laryngeal Cleft Network
• Stay updated on Marcus’s journey by following his CaringBridge Page!
• join the conversation in the Laryngeal Cleft Network Facebook Group

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